Spinal Muscular Atrophy
Nusinersen is a medication that is available for treatment of Spinal Muscular Atrophy (SMA). It is given via an injection into the spinal canal. Please watch Byron as he tells the story of his visit to hospital for Nusinersen, so you can learn what to expect when you come to QCH for your treatment.
QCH Neurosciences – Neuromuscular Service would like to acknowledge the Foundation, Juiced TV, staff and Byron, as without their contributions this video would not be possible.
Useful links
- How to make yourself more comfortable during medical procedures: “You Are The Boss of Your Brain”
- Information about SMA including Standards of Care Guidelines
Family support organisations:
This service is available at
Metabolic Medicine and Neurosciences (6c)
Queensland Children’s Hospital
Level 6
501 Stanley Street
South Brisbane
QLD 4101
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Contact details
t: 07 3068 2880 | 07 3068 1111 (after hours via hospital switchboard)
e: CHQ_Neurosciences@health.qld.gov.au
Operating hours
Monday to Friday, business hours 9am-4pm (excluding public holidays).