Prescriptions for Neurology outpatients

Apart from prescriptions written at the end of an inpatient stay, or during outpatient clinic visits, we encourage all patients to obtain repeat medication prescriptions from their usual general practitioner (GP). This includes PBS authority medications, and increased quantities or increased repeats for non-authority medications.

Some medications can only be prescribed by a consultant neurologist or are only available through Queensland Health hospital pharmacies. These medications are listed below. If a prescription for these medications is required between outpatient visits, then you will need to contact your child’s neurologist via email at CHQ_Neurosciences@health.qld.gov.au

It is very important that you don’t run out of your child’s medication, as you may not be able to obtain a new script or supply on short notice. Please notify your child’s neurologist when you collect your last repeat of medications on the list below or give at least four weeks’ notice.

Epilepsy

  • Cannabidiol (Tilray CBD*) – this is ordered from overseas by hospital pharmacies only.
  • Cannabidiol (Epidyolex) oral liquid – PBS scripts for ongoing patients may be written by GPs or paediatricians.
  • Cannabidiol (Epidyolex) oral liquid – Non-PBS Medicines Access Program scripts can only be written by neurologists.
  • Clobazam (Frisium) tablets – Non-PBS scripts may be written by GPs or neurologists. Cost may vary between hospital and community pharmacy.
  • Diazepam oral liquid
  • Fenfluramine oral liquid*
  • Folinic acid (Leucovorin) tablets
  • Midazolam plastic ampoules 5mg/mL - Non-PBS scripts may be written by GPs or neurologists. Cost may vary between hospital and community pharmacy.
  • Phenobarbitone oral liquid
  • Phenytoin oral liquid
  • Pyridoxal-5-phosphate capsules* and ampoules*
  • Pyridoxine tablets (This can be purchased without a prescription at local pharmacies, cost may vary)
  • Potassium bromide oral liquid* (manufactured upon request only – limited shelf-life)
  • Rufinamide oral liquid* and tablets
  • Cyproheptadine tablets (This is a Pharmacist-Only medication at local pharmacies, cost may vary)
  • Flunarizine tablets
  • Amifampridine (Ruzurgi) tablets* / 3,4-Diaminopyridine tablets
  • Ataluren (Translarna) sachets*
  • Deflazacort (Calcort / Deflazacort EG) tablets*
  • Pyridostigmine tablets
  • Risdiplam oral liquid
  • Blood test strips for glucose and ketones
  • Potassium citrate (carbohydrate-free) oral liquid
  • Fruitivits (multivitamin for children under 3 years of age)
  • Alimemazine tablets*
  • Melatonin sublingual liquid* and prolonged-release tablets*
  • Ruxolitinib tablets*
  • Sirolimus ointment (manufactured upon request only – limited shelf-life)

Migraines

  • Cyproheptadine tablets (This is a Pharmacist-Only medication at local pharmacies, cost may vary)
  • Flunarizine tablets

Neuromuscular

  • Amifampridine (Ruzurgi) tablets* / 3,4-Diaminopyridine tablets
  • Ataluren (Translarna) sachets*
  • Deflazacort (Calcort / Deflazacort EG) tablets*
  • Pyridostigmine tablets
  • Risdiplam oral liquid

Ketogenic diet supplies

  • Blood test strips for glucose and ketones
  • Potassium citrate (carbohydrate-free) oral liquid
  • Fruitivits (multivitamin for children under 3 years of age)

Other

  • Alimemazine tablets*
  • Melatonin sublingual liquid* and prolonged-release tablets*
  • Ruxolitinib tablets*

Tuberous Sclerosis Complex

  • Sirolimus ointment (manufactured upon request only – limited shelf-life)

Some medications require individual patient approvals or special import permits (items marked with *) and these orders can take longer to process. Please speak to the Pharmacy Department by calling 3068 1900 about how this impacts your child’s order.

Contact us

Neurology Department (6C)

Level 6, Queensland Children’s Hospital

501 Stanley Street, South Brisbane QLD 4101

t 07 3068 2880

e CHQ_Neurosciences@health.qld.gov.au

Developed by the Neurology Department, Queensland Children’s Hospital. We acknowledge the input of consumers and carers.

Resource ID: FS244 Reviewed:  January 2024

Disclaimer: This information has been produced by healthcare professionals as a guideline only and is intended to support, not replace, discussion with your child’s doctor or healthcare professionals. Information is updated regularly, so please check you are referring to the most recent version. Seek medical advice, as appropriate, for concerns regarding your child’s health.

Last updated: February 2024