Your stories

Sixteen-month-old Mason, of Alexandra Hills, was born with Allan-Herndon Dudley syndrome, also known as MCT8 deficiency, a rare condition that causes intellectual disability and problems with movement.

Eleven-year-old Ava from northern New South Wales is an agile and athletic young girl and you would never guess her health condition.

Just before his 17th birthday, Lewis from Darwin, experienced unexplained dizziness and nausea. A trip to the GP eventually led him to a referral for a scan to investigate what was happening in his body and a tumour the size of a large egg was found on Lewis’ brain.

Almost two years on from a near-fatal stroke experience, Anthea from Toowoomba is a happy, healthy toddler. She is a strong, determined little sister to Kai and daughter to Karli and Dan.

Twenty-month-old Amy has 22q11.2 deletion syndrome, a rare disorder caused by the deletion of a small part of chromosome 22, which left her with a cleft of the soft palate.

Fifteen-year-old Connor is lucky to be alive after his skull was shattered after a cliff fall in March. The injury meant he has to learn to speak, read and write again, but his determination is inspirational.