Your stories

As a toddler, Harrison began showing difficulties with communication and social interactions but his mum, Skye, never imagined a genetic disorder would be the underlying cause.

Tegan’s experience with CRPS, began shortly after undergoing spinal surgery to correct her scoliosis at the age of 16 years.

When Lucy started showing symptoms of Type 1 diabetes in May 2021, no-one expected both Lucy and her older brother Thomas to be diagnosed with the condition just three days apart.

Annabelle’s journey began in August 2020 when, at the age of 9, she became seriously unwell with abdominal pain.

Grace was born a non-identical twin at 29 weeks with anotia (absent ear) and aural atresia (absent ear canal), which meant she was missing the entire ear on her right side.